Never taking one single breath for granted.... enjoying the journey one day at a time!

Thursday, September 16, 2010

SMA Blog Party!

Today is the first ever of this type of blog party. Here's what I'm asking you to do.... go to VoteForSMA.com and pick the option for The Gwendolyn Strong Foundation. Vote every day from now until Sep 29th to try and get the most votes through the Jimmy Johnson's Samsung Helmet of hope contest. Its very easy I started this today and it took all of 1-2 minutes. Here is why its so important to me!!!

What is SMA?? Spinal Muscular Atrophy.... a disease that kills and makes children's life full of pain and discomfort. There are many mutations some even unknown and some that are worse than others. A few sweet people I have meet through the blog world have SMA babies. One of their babies had SMARD. SMARD is a Spinal Muscular Atrophy with Respiratory Distress. The neurological doctors at Primary Children's thought very strongly that Kaels neuromusuclar condition was a part of this family. Because the gene was mutated they were never able to label it exactly SMARD but were pretty sure he had a string of this horrible disease. It impacted his breathing to the point he couldn't do it on his own. He was required to be intibated or have oxygen at all times. He lived in pain and struggled from the day he was born.

With SMA roughly 1 in 10,000 children are born with this disease. With SMARD roughly 1 in 1,000,000 are born with the disease.

People are working very hard day and night to find a cure for this disease so that no other families have to loose a child in such a heart wrenching way. Please, please vote. It means the world to me and a few of my fellow blogger friends!! $20,000 would be an amazing help to end this horrible disease. Like I said it only takes a few minutes but could impact hundreds of thousands of people. Please help raise awareness and add this link to your blog, facebook whatever just help spread the word!!

Thank you in advance for your votes. If they could find a cure for this it would mean less moms and dads with angel babies, less kids with out their siblings, less grandparents with out grandkids...


The Johnson Crew said...

Maybe Kael and Owen have more in common than just age.

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