Never taking one single breath for granted.... enjoying the journey one day at a time!

Saturday, October 3, 2015

Cystic Fibrosis MRSA clean out!!

Tiara cultured MRSA the first part of July. We did a 4 week round of antibiotics at home trying to clear it out and did a full bleach of the whole house... It still didn't kick it. So the last week of August we headed up to Primary Children's for a 2 week stay. Seriously I was dreading it as Tiara is 2.5 mobile and pretty clear about what she wants. The fist day up there she was sedated and got he PICC line placed, they started her on all her meds she got iv antibiotics 3 different kinds every 4 hours she was hooked up a majority of the time. She had a scary allergic reactions to one of the meds so we had to switch that one out. It's always so scary to leave your child with complete strangers to go under in surgery thankfully the doctors and nurses are so amazing. So for 2 weeks we were in patient lots of singing, reading books , playing games, painitng nails, doing art projects and playing hospital Bingo. We were so blessed to have many visitors, people sent balloons cards gifts and sent love and prayers we are so lucky to be surrounded by amazing people!! A million thank yous would never be enough! People brought food, kept the boys, filled in at work etc. We are so blessed! Her first culture after the hospital came back clean we go in 2 weeks for a second culture. Praying that it is gone for sure. Tiara was so excited to go home and hee brothers were equally excited to have her back!! Praying for no more stays for a very long time!


Chantel said...

Glad she is home. How scary!

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